Increasing the representativeness of patient reported outcomes

Members of the PROMS engagement coordination team on stage and online during the meeting.

Members of the PROMS engagement coordination team on stage and online during the meeting.

The Global Patient Reported Outcomes for MS (PROMS) Initiative is a unique collaboration, aiming to reach consensus on a set of standardised Patient Reported Outcomes (PROs) to be used in therapy development and healthcare.

The theme of the 2022 annual meeting of the PROMS Initiative was how to improve the representation of people affected by MS in the development of PROs. In November 2022, we welcomed people affected by MS, researchers, clinicians and industry representatives from across the globe to Baveno, Italy, to discuss this important topic.

The meeting was divided into four sections:

1. Barriers and limits in the collection and use of PROs
2. The challenges of achieving representativeness, as experienced by people affected by MS
3. Addressing the gaps in currently available PRO measures
4. The future of remote monitoring and self-management – the role of digital technology

You can access the full agenda here and view recordings of the meeting below.

Session 1: Barriers and limits in the collection and use of PROs

Session 2: The challenges of achieving representativeness, as experienced by people affected by MS

Watch a recording of session two (part 1) here.

Watch a recording of session two (part 2) here.

Session 3: Addressing the gaps in currently available PRO measures

Session 4: The future of remote monitoring and self-management – the role of digital technology