Join the PROMS annual meeting

The Global Patient Reported Outcomes Initiative is hosting their annual plenary event on November 20th, in-person and online – and you can join.

Sign up now to join the session: ‘Digital science of people with MS input in the era of personalised medicine’.

What is the PROMS Initiative?

‘PROMS’ stands for Patient Reported Outcomes (PROs) for MS. PROs allow an individual to share their lived experience about their health or quality of life. Examples include how they feel, what symptoms they are experiencing, or what they are able to do.

The PROMS initiative is a one-of-a-kind global initiative, aiming to reach consensus on a set of standardised PROs to be used in therapy development and healthcare. PROMS is an initiative rallying many players – or ‘stakeholders’ – including people affected by MS, researchers, clinicians, pharmaceutical companies, MSIF’s member organisations and funders. The Initiative is led and coordinated jointly by MSIF and the European Charcot Foundation, with Associazione Italiana Sclerosi Multipla (AISM) as the lead agency.

You can read more about the PROMS Initiative here.

Take part in the PROMS plenary session

The session, titled ‘Digital science of people with MS input in the era of personalised medicine’, will delve into how digital technologies can enhance the use of Patient-Reported Outcome Measures in MS research and care.

It’s an immersive five-hour session, hosted on Wednesday 20 November at the 32nd Annual Meeting of the European Charcot Foundation.

The meeting will bring together diverse perspectives from people living with MS, researchers, healthcare professionals, industry, regulators, and policy makers. The discussions will address critical questions regarding existing needs, barriers, and the successes in applying digital phenotyping to PROMs.

The event will explore:

• Redefining the state-of-the-art of PROMs building on science of patient input and by also exploring the experience of other neurological disorders, as per EU collaborative efforts.
• Utilizing digital tools for both passive and active phenotyping of people with MS dominant functional domains and interdependencies.
• Evaluating the role of digital phenotyping in capturing real-world data and its influence on patient outcomes.

Everyone is welcome to participate online. Register as an ‘Online PROMS Participant’ to get free online streaming access. Sign up now! https://msintfederation.org/48xEQkK